After flying out to the US last May to seek treatment after being diagnosed with a rare condition called Eosinophilic Granulomatosis with Polyangiitis (EGPA) earlier this year, Kris Aquino shared an update with her followers last June 30 through a video chronicling what she and her sons Bimby and Josh have been going through these past few weeks. The update was written in the form of a letter to Kris’s late brother, former President Benigno “Noynoy” Aquino, whose first death anniversary was last June 24.
Kris gave an update on her Multiple Autoimmune Syndrome. She wrote, “Before I had 2—Autoimmune Thyroiditis and Chronic Spontaneous Urticaria, SLE or Lupus has remained a question mark—I am near the borderline, have 3 out of the 5 prerequisites that would absolutely confirm if I have it BUT 3 out of the 5 could just be a warning that it’s there, but for right now it’s still asleep.
“My 3rd confirmed autoimmune condition is Vasculitis. I had to have a very rare type. It was formerly known as Churg Strauss Syndrome but now it’s EGPA. We came here for me to try MEPOLIZUMAB—not yet FDA approved in Singapore nor in the Philippines.”
In her latest post, Kris also told her 4.8M Instagram followers that she was looking forward to sharing better news in the future. She wrote, “For now, 12 noon, June 29, 2022 where we are—this is what I felt you needed to know, straight from me para alam ng lahat ito ang to totoo.
“This isn’t a permanent goodbye, ibalato nyo na lang hanggang malagpasan namin itong matinding pagsubok. Thank you for all your prayers- I am forever #grateful.
Promise, pag may good news ako, after thanking God & telling my sisters & my trusted friends- you’ll see a post from me. In God’s perfect timing… ”
In the posted video, Kris revealed their family’s battle with the COVID virus after her eldest son Josh first tested positive last June 20 followed by her and her younger son Bimby.
She wrote, “Nurse took his temperature then they got antigen kits, tested him 1st because he was so unlike himself—he was just lying down, on the sofa no energy to play or watch YouTube on his phone. I was in our room upstairs asleep. Nurse woke me up to tell me that kuya was positive. I honestly couldn’t understand what she was trying to tell me. Until Bimb came to explain & he told me to please put on a mask. He helped me go downstairs, my instinct was to go & hug kuya but everyone told me I needed to leave immediately & move to a hotel with nurse & bimb because I was severely immuno-compromised & being covid positive could mean ICU for me.
“It was heartbreaking to leave kuya, I felt I was abandoning him in our time of need. That night nurse Christina came to our hotel & she gave all of us PCR tests. The results came out midnight of the 21st—at the point we were all still negative. By the 23rd mid-morning I asked nurse Eloi to please check my temperature because I had chills & something was off. True enough I had fever. I said to please get an antigen test—nurse Eloi tried to remain calm but in less than 5 mins both red lines had appeared. Kuya was already at the same hotel so I told them to please take bimb.”
After making a full recovery after two weeks, Kris shared that her latest treatment which will include an immunosuppressant called Rituxan which is also known for use in chemotherapy and is used for complicated autoimmune cases like hers. Kris had also a cancer gene panel which came out negative for various kinds of cancers.
The 51-year-old host and actress also explained why she has decided to take a hiatus from social media.
“It was my choice to address as many issues about my health as I could while allowing myself some privacy by not saying where we’ll be going because that decision will be made after we are totally Covid free & my attending physician here in Houston can help me choose the hospital, team of doctors, and proximity to friends or family (meaning a solid support system) that will best suit my needs… please know that I remain THANKFUL for all the concern & prayers you have sent our way BUT during very difficult times, I want to just keep the suffering to myself with only family & trusted friends kept informed on a ‘need to know’ basis because everyone else is also going through their own personal trials—ang hirap ng buhay para sa marami, nakakahiyang maging pabigat pa ‘ko…
“I know me, impossible na hindi ako umamin pag hirap na hirap na- so for now FOCUS tayo on ourselves… we all have problems, we all have worries, and we all have hardships.
“God bless us all. Until our REUNION…”
In an earlier report, Kris’s physician Dr. Nino Gavino, who successfully diagnosed her in the Philippines shared that the life expectancy for her condition, if left untreated, is at about 25 percent. With proper medical treatment, the five-year survival rate is at 62-percent with the condition being so rare it only happens to one in every million.